HealthInfo Waitaha Canterbury
Parkinson disease
Mate pākenetana
Parkinson disease is a neurological condition, which means it affects your brain and nervous system.
It is progressive, which means it gradually gets worse. The condition develops slowly as nerves in a part of your brain called the substantia nigra degenerate or die. These nerve cells are responsible for producing a chemical called dopamine. Dopamine acts as a messenger between the parts of the brain and nervous system that help control and coordinate body movements.
We do not know what causes this to happen.
Parkinson disease usually happens to people over the age of 60, though it can start earlier.
Symptoms of Parkinson disease
The three main symptoms of Parkinson disease affect your physical movement (motor symptoms).
Tremor
- About 70% of people with Parkinson disease have a tremor.
- The tremor involves shaking, particularly when resting. It often occurs in one hand or arm rather than both (at least to start with).
Stiffness
- Rigid muscles can make it harder to turn over in bed, get out of a chair, do up buttons and so on.
- The stiffness can also affect your posture and facial expressions and lead to aches in your muscles.
Slowness of movement (also known as bradykinesia)
- It can be hard to start a movement, or it might take you longer to do a task.
- This can also affect repetitive movements, like handwriting and getting dressed.
You may also experience a range of other physical and mental symptoms (non-motor symptoms), such as:
- depression, anxiety or loss of interest in life
- sleep disturbance
- extreme tiredness
- lack of the sense of smell
- constipation
- trouble swallowing or speaking
- skin sensations and pain.
The main symptoms of Parkinson disease are also the main symptoms of several associated conditions. These are grouped together under the term parkinsonism.
Diagnosing Parkinson disease
There are no tests that show that you have Parkinson disease. Your doctor will base their diagnosis on your symptoms, medical history and a detailed physical examination.
It can be hard to diagnose Parkinson disease in the early stages because the symptoms are usually mild at first. If your doctor thinks you might have Parkinson disease, they will refer you to a specialist. This will usually be a neurologist (a specialist in conditions affecting the brain and nervous system). Or it might be a geriatrician (a specialist in conditions affecting older people).
Treating Parkinson disease
There is currently no cure for Parkinson disease. But treatments are available to help reduce your symptoms and maintain your quality of life for as long as possible. These include:
- supportive therapies, such as physiotherapy and occupational therapy
- medication
- deep brain stimulation (DBS).
If you have mild symptoms of Parkinson disease, your doctor might not recommend medication. Instead they will focus on supportive therapy and lifestyle improvements such as physical activity and relaxation. As your symptoms get worse, they will prescribe medication.
Supportive therapies
There are several therapies that can make living with Parkinson disease easier and help you deal with your symptoms. These include:
- physiotherapy to relieve muscle stiffness and joint pain through movement (manipulation) and physical activity
- occupational therapy to work out practical solutions to difficulties in your everyday life, such as dressing yourself or getting to the local shops
- speech and language therapy to help with swallowing difficulties and problems with speech
- dietitian therapy for advice and practical solutions to eat well and manage your weight. There is no special diet for Parkinson disease but eating well can help slow down its progression and keep some symptoms under control.
Medication
Medicines do not prevent Parkinson disease, but they aim to improve your daily functioning. You will usually start taking medicines when the symptoms disrupt your daily life.
Everybody's experience of Parkinson disease is different. Your doctor will work with you to find the best treatments for your particular symptoms. Depending on your symptoms and responses to medicines, you may need to try a combination of medicines. Your medicines may change over time as your symptoms change.
Examples of medicines for Parkinson disease include levodopa + benserazide, levodopa + carbidopa, ropinirole, pramipexole, entacapone, tolcapone, rasagiline and amantadine.
Read about medicines for Parkinson disease, including tips for taking them and medicines to avoid.
Your doctor will also prescribe medication and other treatments as necessary. These will help you manage other symptoms, such as depression, pain and gastrointestinal problems.
Deep brain stimulation (DBS)
DBS is a therapy aimed at treating multiple symptoms in some people with late-stage Parkinson disease. It is only suitable for a small number of people.
Read more about deep brain stimulation.
Self-care with Parkinson disease
Taking good care of yourself is the key to living well with Parkinson disease.
Exercising is one of the most important things you can do to stay well. It improves your overall health and wellbeing and appears to improve your body's reaction to dopamine.
Find something you enjoy and aim to do it every day. Medication can help you keep going with your chosen activity.
Parkinson's New Zealand has a specific exercise programme for people living with Parkinson disease.
There a several apps for Parkinson disease, including exercise programmes.
Eating well and staying a healthy weight are also important when you have Parkinson disease.
Support for Parkinson disease
Some people find it helpful to talk to others with Parkinson disease, either at a local support group or online.
Multiple Sclerosis and Parkinson's Canterbury provides health and wellbeing consultations, gym and exercise classes, support groups and education workshops. These are for people with, and those providing care for people with multiple sclerosis or Parkinson disease.
Parkinson's New Zealand provides support and information for people with any parkinsonism condition.
Outward Bound runs UPBEAT, a seven day outdoors course in the Marlborough Sounds. The course is suitable for people who have early-onset Parkinson disease and are under 65 years old.
Sport Canterbury has a list of classes and programmes for people with specific health conditions, including Parkinson disease.
If you have been diagnosed in the last 12 months, the Duncan Foundation may be able to help with private physiotherapy.
HealthInfo recommends the following videos
- Healthify He Puna Wairoa – Parkinson's videos
For a series of videos on aspects of Parkinson disease including personal stories, follow the link, scroll down the page and open the Personal stories block.
HealthInfo recommends the following pages
- Parkinson's New Zealand
Information and support for people with Parkinson disease and their carers.
- Cantabrainers Choir
Cantabrainers Choir is a choir for people with conditions such as Parkinson disease, stroke and multiple sclerosis. It aims to improve and maintain their communication through singing and socialising.
Content shared between HealthInfo Canterbury, KidsHealth and Health Navigator NZ as part of a National Health Content Hub collaborative. Page created November 2022.
Sources
Review key: HIPAR-19688
