Open a PDF version to print this topic

HealthInfo Canterbury

Lymphoedema

Lymphoedema is swelling caused by a build-up of lymph. Lymph is a clear, protein-rich fluid containing many white blood cells. Your lymphatic system carries lymph through your body.

Your lymphatic system is a network of channels and nodes (filters). It's part of your immune system and helps fight infection.

Lymphoedema happens because your body's lymphatic system isn't working properly. Lymphoedema can affect any part of your body, but it most commonly affects your arms or legs.

While lymphoedema isn't life-threatening, it also can't be cured. But treatment can improve and control your symptoms.

What causes lymphoedema?

Sometimes your body produces more lymph, for example, when you have an infection, injury, or disease, or when your muscle cells work hard during strenuous exercise. Some diseases, such as venous disease, can also change the amount of lymph that your body produces.

Normally, your lymphatic system and blood vessels can cope with this extra fluid, but if either is damaged, the fluid builds up in your tissues. This causes swelling.

You can inherit lymphoedema but this is rare. If you inherit lymphoedema, it can start at birth or soon after. It can also occur at puberty or later in life. It most often affects your legs.

More commonly, an injury or damage to your lymphatic system causes lymphoedema.

The following things increase your risk of developing lymphoedema:

Signs of lymphoedema

If you have lymphoedema you are likely to notice swelling or a feeling of fullness in your arm or leg. Your arm or leg might also feel heavy or painful, and your clothing or jewellery might feel tighter. This is common in the early stages of lymphoedema. You should get it checked out, even if the swelling comes and goes.

Reducing your risk of lymphoedema

Man doing tai chiIf you've been told by a doctor that you're at risk of lymphoedema, there are ways you can reduce your risk.

Managing lymphoedema symptoms

There aren't any medicines for lymphoedema. Diuretics (substances that make you produce more urine) can help with swelling in legs due to heart failure. But they don't help with lymphoedema.

If you have lymphoedema, you should follow the advice above under Reducing your risk of lymphoedema. There are also other ways to help manage your lymphoedema symptoms.

Get advice from a lymphoedema specialist if you're going to be travelling for longer than four hours.

See your doctor immediately if you get any pain, redness, or heat in your affected arm or leg, especially if you also have flu-like symptoms or a fever. If this happens, you may have cellulitis, which is a bacterial infection. You'll need to take antibiotics immediately for this.

Think about your work activities and if they affect your lymphoedema. Heavy lifting and repetitive movements aren't good for lymphoedema. Pay attention to your posture and how you sit at work. It's a good idea to wear a compression garment at work.

Go to one of Canterbury DHB's lymphoedema education sessions held at Burwood Hospital's Physiotherapy Department.

Lymphoedema specialists are usually nurses, physiotherapists, or massage therapists who are specially trained to manage lymphoedema. They provide several types of treatment including bandaging, massage, exercise, and taping. They can also measure and fit you for compression garments and tell you what you can do to manage your condition.

You can get treatment at the Physiotherapy Departments of Burwood and Timaru hospitals. There are also private lymphoedema therapists. You may be able to get help to pay for this through WINZ, the Cancer Society or another agency. Talk to your health professional about this.

Other treatment options

There are some types of surgery for lymphoedema but none of them are done in Canterbury. Surgery is rarely done in New Zealand and there's no surgery that removes the need to wear a compression garment.

  HealthInfo recommends the following pages

Written by Canterbury lymphoedema specialists. Adapted by HealthInfo clinical advisers. Updated September 2017.

Sources

Page reference: 30588

Review key: HILYM-30588